Stories of Us: How telling stories can change the world

(Excerpt from my recent webinar for Faculty of Medical Leadership & Management)37vqcavvujilgcqe08wycqlis3st9goeo2j8zhaosy9b6es00m2vwoazsz7gbs7d

Storytelling is a powerful tool for change. Throughout history stories have been used to translate values and inspire action, to bring people together, bind communities.

ethiopian famineMy story starts with my first call to medicine, one of my earliest memories, enhanced over the years by my mother’s retellings. Not in fact beginning with my story, but the story of a nurse working in Ethiopia during the famine who my mother and I watched together on the news (my mother never being one to shy away from exposing me to the stories of the world, for how else does a child learn and grow?).

I was fascinated by this doctor as she spoke about the challenges faced by the people affected by the famine. Her compassion, her ability to take responsibility for and advocate for others, her efforts to help directly through Caring and indirectly through telling their story to the world touched me deeply. I wanted to be lighbulb bright 2that woman, wanted to give that care and tell those stories. That set me on a path to becoming a doctor, later sealed by not only my love and aptitude for science and communication, but also my experiences of growing up with and eventually losing a parent, my mother, to cancer. Being an isolated child in the disruption and distortion of ill managed grief that takes its toll on a family, I wanted to help ease and assist others who may face such challenges in life, health and death.

activismBut when I got to Uni I was sorely disappointed! I was looking for the student activism, you can make a difference attitude I had seen in pictures from the 60s, but what I saw a superficiality in those first few months. There was a lack of soul in the disimpassioned clinical lectures, no actions to be taken, no stories being told, nothing to believe in, nothing to inspire me. And so I was quietly isolated from my dreams and displaced from my hopes. I went along with all the usual broken bulbfresher’s antics, but it all felt a little empty and meaningless, my great disillusionment. Now of course over the years that changed and forward thinking lecturers would sometimes share a little of their story, or when finally getting more patient contact I was honoured to be given insight into theirs. But I want to focus on one particular story that really changed my life and led to the evolution of my story and that of hundreds of others…

Par6102806At a medical students conference at the end if my 1st year, I Heard a story: a story of Raz, a medical student from Cardiff, who told of his colleagues experience of travelling to Belarus on elective. Visiting an orphanage and finding physically and mentally disabled children so starved of love and attention they would often bang themselves against the wall, just to have some stimulus, some feeling in their locked in worlds. The story of how those medical and physiotherapy students came back to Cardiff University, organised and began a relationship with the orphanage. They began a small project, sending out students to help with play care and stimulation, training staff, securing funding for sensory stimulation light bulb fireequipment, changing local attitudes towards the kids, de stigmatising and integrating them. Raz told us of how he had gone out and engaged with this project and what he had learned about the power of taking simple positive thoughtful action. Suddenly the light came back on, possibilities flooded in before me… I saw that students could have impact that I did not have to wait in limbo for 5 years before I could make a difference in the world.

UntitledSo when Raz asked if anyone else wanted to try and establish a group like this, I tentatively and shyly raised my hand.

Now back then, I would shake a little and turn red just reading out a case report in class, and the idea of leading was the farthest thing from my mind. I was raising my hand to be led by some else, to maybe make some fliers, but not expecting to lead myself.

smile-because-I-am-overwhelmedSo it came as an overwhelming surprise, when through fate or circumstance, somehow 3 months down the line I found myself taking the helm of the first official project at Birmingham Uni. Travelling to Zambia to seek out a local partner, recruiting, fundraising, coordinating, training and not too long after leading our first wave of students on our first pilot project! It was a whirlwind, I was terrified and completely overwhelmed! Suddenly, there were a lot of people looking to me for answers and guidance! How would I lead these students, how would I inspire them and bring them together? Not possible I thought! Oh, I could study and learn and regurgitate knowledge, strategy and information… but this did not seem to begin to tackle that intangible elusive concept of leadership in its entirety!

But despite my fears and ignorance of leadership and public speaking, I had always been an open person, wearing my heart on my sleeve. Those who know me well will tell you, with affectionate patience, that I am known for sharing pieces of my life story on a one to one basis and I am always keen to discover yours.

child storyAs a child, when I was angry or frustrated at the cancer card life had dealt her and us… that age old “Why me?” Syndrome humanity is so prone to…My late mother had always told me that behind every door is a a story, that everyone’s story is equally valid, and, that if we share and listen, we can learn from each other’s stories. So, I have always naturally shared, sometimes over shared… but shared nonetheless, and asked and listened, perhaps I think in a quest to try and interpret life and the world around me.

pic_rippleeffectAnd so I discovered that little by little this natural inclination to share my story, my passion and encourage others to share theirs began to have an effect, began to build a community, began to inspire those around me to take action.

Thus, through the telling of many stories, Raz’, mine, our  student volunteers, the people we worked to support in Belarus and Zambia… SKIP (Students for Kids International Projects) was born, and I became a Untitled1unexpected leader not just for a few students at my Uni, but for scores of students across the country.  And what was then 2-3 students, is now a national charity, with over 10 active university branches working on projects around the globe, of which I remain a Patron to this day.

In SKIP our storytelling continues to drive, define and inspire us…  when meeting, fundraising, recruiting or training butterflieswe share the stories of our struggles to manage our committee and projects and of the challenges faced by the children and communities we work with. At our annual elections individuals share their story of their journey, and how they came to have such passion and drive to commit so much of their free time whilst also undertaking their studies.

It is these stories that create the tangible indefatigable organisational drive in SKIP, our perseverance in the face of adversity. An organisation that thrives on 100% volunteers, mostly full time students and a few full time healthcare professional alumni, and takes no unethical funding streams, has overcome many seemingly insurmountable challenges and will continue to do so because of the shared passion, commitment and motivation of our members, the shared story of us.  And each time I hear those stories I am reminded, reinvigorated and re-inspired to continue to take action, even after 12 years of Flight of the Butterflies - Monarch Sky2 - SK Films2 (1)hard work.

And so I am inspired to share with others the art of storytelling in the hope that they too can build communities for positive change.

 

To be continued…

 

Permanent link to this article: https://clairemariethomas.com/2015/01/stories-of-us-how-telling-stories-can-change-the-world/

The road to Bajhang

The road is long…with many a winding turn!

20110709-105621.jpgThe journey to Bajhang was at best arduous, at worst death defying. To say that Bajhang is remote and virtually inaccessible could even began understatement! Our bus lurched round sharp mountain bends of narrow roads with sheer drops off to the side…sometimes on both sides at once! As we got closer to Bajhang it became less of a road and more like partially levelled out rubble, tipping the bus precariously over to one side, then the next. I am certain my window was almost horizontal with the ground a few times! The sporadic down pours of the early monsoon weather creeping in did not help to make us feel more safe or secure!

20110709-105643.jpgAt one point, we all had to disembark to cross a small landslide, which after moving around a few rocks the bus eventually conquered! Apparently, I discovered, my return journey would be far worse as the impending full force of the monsoon would like take out huge chunks of the road…meaning done hardcore trekking would be on the cards!
Every now and then we would meet a cargo truck hurtling the other way, horn blaring, brightly coloured art work emblazoned in it’s sides. The fine art of passing these trucks us not to be sniffed at…often entailing some very nerve wracking cautious reversing and a battle of wills between the two vehicles, played out in a cacophony of horn bursts!

Loud Nepali music was played constantly for the whole 20 hours journey…something I actually didn’t mind as I am sure that as well as keeping all the passengers awake it was also doing the sane for the driver! 😉

20110709-105706.jpgThe pit stops were taken in the middle of the night, for dodgy looking food, rest and copious amounts of much welcomed Nepali tea. Toilets were wherever you could find a dark corner, praying not to be stumbled upon, or worse pee-ed upon by a fellow traveller!Hilariously, every now and then we would come across a road sign…ironically indicating a sharp bend ahead or a series of turns. How it was decided which of the hundreds of endless winding corners deserved a sign was completely beyond me, as it seemed to indicate no real distinction in their severity.
At last, almost a full day after boarding we arrived at our destination…Chainpur and the Bajhang District Hospital. My home for the next few weeks, sparse and remote …but at least stationary and not at risk of plunging to our deaths!

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Permanent link to this article: https://clairemariethomas.com/2011/07/the-road-to-bajhang/

Motivating remote healthcare workers

Whenever we are given power and respect in life it is our responsibility, no, our duty to give that power and respect back to our benefactors….as teachers, care providers, protectors and leaders!

So today was my turn… I was honoured to be invited to give the introductory talk for remote community healthcare workers training program in quality improvement out here at Bajhang District Hospital in remote western Nepal. I chose the topic Why Improve Quality? and aimed to empower them to consider not just indicators and numbers but the real focus of all healthcare…the patient!

We had great fun and I am due to meet with them again tomorrow to discuss TB and on Friday to delve deeper into Quality Improvement theory and practice.

I am sharing with you here the basic script if today’s talk and welcome your feedback 🙂

” Why improve quality?

For our managers?
For funding?
For donors?
To look good?
So people will respect you?
To reduce costs?
To reduce readmissions?
To reduce disease?

Most importantly we should improve for the patient! To make the patient’s experience QUALITY!

The patient deserves respect! Dignity! The right to trust in their healthcare worker, in their healthcare system! The right to be comforted when they are afraid! The right to Confidentiality and privacy when they are exposed!

We have a position of great power…people come to us when they are at their weakest, their most vulnerable and they are asking us for help! Illness takes away people’s power, their control over their own lives and destinys. Don’t we want the help we give to be the best it possibly can? When they are weak, give them support! When they are vulnerable offer them security, safety! To give them back some of the power over their lives that illness has stolen from them!

What a wonderful thing that people respect us enough to entrust us with their lives when they are in need! What a beautiful gift we have been given! Let us not abuse that gift! Let us not lament it! Let us be grateful and show that gratitude through quality patient centred care!

Health is a human right and we are here to facilitate the accessing of that right!

Be proud of that role! Don’t just go to work and go through the motions! Be active in ensuring that each patient receives the best you have to offer!

What is the first rule of healthcare? Above diagnosis, above treatment…First do no harm!

Define health: physical, mental, spiritual and social!

Bad communication, mistakes, wrong drugs, no access, no privacy/confidentiality, wrong tests, poor infection control…

All these things can harm the patients health in one way or another! Without quality in all these areas we can directly cause fear, shame, anger, isolation, loss of hope, infections, reactions….

We are not here to harm the patient…we are here to protect them!

Often we hear “I am too tired, too busy…I don’t have time for good communication, for confidentiality, for washing my hands, for double checking my prescriptions…”

All I can hear is ” I don’t have time to care!” Those are not the words of a healthCARE worker!

So be proud of your role as a protector of human rights. I can’t do it…only you (the community healthcare worker) can protect your community!

And so make sure that your care is centred around the patient! That you improve quality for the patient…Not for a policy, not for the finance, not your managers….

Improve quality considering all aspects of health and put the care back into healthcare! ”

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Permanent link to this article: https://clairemariethomas.com/2011/06/motivating-remote-healthcare-workers/

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